Life Topics

The Helmet

At first, her room looks like a normal young lady’s bedroom but look closer and you get the sense its occupant is not a typical salty twenty-something. A small 8 X 10 box with lemon-ice walls and heavy sky blue curtains. On the windowed wall is a small video camera perched on the curtain road, pointed towards her bed and on either side of the windows are two painted portraits of her in the water that I painted several years ago. No Swifty or inspirational posters in sight.

On her dresser is an old friend; Curious George, a large stuffed monkey that she used to drag around, sans helmet, in our old hipster Portland neighborhood headed for the bus stop where she would wait impatiently for her father, practicing a new dance move she wanted to show him. “Mom watch, did you see, did I do it right?”

Her bedroom has evolved over the years depending on her abilities and interests. She has had baskets of toys, stuffed animals, picture books, glow-in-the-dark star stickers and times when it resembles a hospital room with boxes of special formula, iv pole, Hoyer lift, a bedside commode and an extra rolling cot when I add night nurse to my day job.

One constant has been a helmet hanging on her simple wooden bedpost. It is the first thing I put on her in the morning after her full-body stretch and the last thing I take off of her before I boost her sleepy body into her cozy bed and her grandmother and I  take turns smothering her with kisses. The colors have changed and for a brief time the usual soft helmet was replaced with a hard, rather clunky dark blue CCM hockey helmet equipped with a clear plastic face shield. The time she wore this reminds me of when her brain was out of control. Her drop seizures had increased and the sound of the hard hockey helmet thwapping the wooden floor, the drywall, the corner of tables was disturbing, the wretched soundtrack of that time.

The falls happened dozens of times a day. The helmet was worn 24 hours a day coming off only to wash her hair in the bathtub two times a week. So, after two hospital visits and a helmet that looked like it had been worn during a few Bean Pots, I knew it was time for her to have the brain surgery that I had been putting off for over 4 years. Surgery was done and now the beaten and broken helmet is wrapped and hidden in the back of her closet, out of sight.

She has been back to her soft purple helmet for two years now, still falling daily but much less frequently. It is covered in scuffs and scratches like a well – documented history of all of the times I failed her, when I wasn’t able to catch her.   It is  also a road map of her journey of  resilience and her ability to dust herself off and straighten her crown/helmet and move on.  

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VISIT SUSAN ON INSTAGRAM AT  sm_art88
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Life Topics

Tripping

London 2017

Last Friday I gladly volunteered to accompany my almost 19 year old son Taki to the bus station, which would take him to the airport to catch a flight 4 hours later.   He wanted to drive his car, make his way with me in the passenger side.  He  pulled into the parking lot and parked the car.  I was surprised that he parked, assuming he would want to jump out of the car while it was still rolling as to avoid anyone witnessing him getting out of a car with his dear old Mom.  I imagined he would want to wait in the dark, cold, smoky tunnel shaped shelter on his own.  I asked, “ do you want me to wait until the bus comes?”  “Yes”. I silently coached myself –don’t blow it, be cool, be cool, don’t be that Mom “ Are you excited for your trip honey?  Oh my God, honey, really and what a dumb thing to ask AGAIN. Yes Mom (suspected eye roll).  He put on some music – loud – probably to avoid anymore mom questions.  He began telling me about this artist and how he will be going to their concert in Boston in a few weeks with his good friend Keiran.  I had a large proud lump in my chest but a smaller – harder-louder  lump in my throat.  I quickly said “cool” but the reel started to play in my mind- the show was called “things that can go wrong while traveling alone”  I told him again to be aware of his surroundings, drink plenty of water.  And it just started, a rapid fire of advice that I had already spewed upon him  over the past week.  I didn’t even take a breath.  He was looking at me with this gentle look on his face.  “Mom I know, I’ll be ok”  It’s not like this is his first trip.  He has been lucky enough to have traveled since he was a pre-teen.  Some trips on his own, some trips with me and some with his girlfriend.  He is a savvy traveler and a excellent travel companion.

The music was enjoyable, thumping and he sang along and then I spotted the bus, “It’s here.”    I stayed in the car and I watched him board.  Once he had made his way to his seat I pulled next to the bus shelter acting cool and collected, listening to my music turned up loud, thumping and singing full voice.   I  waited until the bus pulled out of the parking lot and onto the highway.  He was off and I felt some relief – knowing he had been looking forward to this trip.  I am  happy that he has found love and joy in his life.  He is off on his journey, not needing me anymore but still letting me see him off. I looked out of this fast food /gas station/bus station parking lot and remembered how many times I had been there myself.  Picking someone up or dropping someone off, thinkin of the times I was the driver and my mother was in the passenger seat seeing me off to follow my heart.  This  place of transition and journeys beginnings and endings right here next to Burger King.  

I, of course was crying at this point, unable to see out of the windshield, glasses useless – I wiped my eyes and looked at the rear view mirror – and dangling from them were his tiny pair of adidas.  I had given him his first pair of sneakers to hang in his car when he got his license.  These tiny things  that I can remember putting on him before trekking to the the bus stop in Portland – on our way to the zoo, the Children’s museum, to the park for a playdate,  to Pioneer square to chase pigeons.   I gave him a solid pair of shoes, comfortable and supportive.  I tied them up tight to make sure he would be safe and keep from tripping.  He still tripped – usually over a rock or a curb – or his own feet.  Sometimes I caught him but not always.  

Life Topics

These days

It is the light she seeks these days

Passing me over, not even a side glance

She walks towards the glistening until it tickles her face

When her gaze has moved from the dark

Her eye lids gently shut to transform the light into something less assaultive to her brain

She is awkwardly still, as if anticipating a warm embrace

she no longer tolerates from me these days

Perhaps I have become dull from what I seek

On rare occasions she invites me with a tug

Trying to drag my heavy body from the brine to see what she feels

An invitation I decline

It is not enlightenment I seek these days